Feeling a little fragile

Sometimes the Goddess deals things my way which I've never been able to explain.
My beautiful daughter's brittle bones is one of those such things.
I don't think I'm angry at her for giving my baby this thing but days like today, I feel full of despair with lots of "Why my daughter???"
I can cope with knowing that I have OI and am ready and able to take on any of the challenges life deals me with it. Why Sarah though??
We've spent the day once again at the Children's Hospital in Melbourne getting this awful infusion pumped into her. I don't know why but I always feel so drained afterward and find that I fall in a heap for a few days after every infusion. Poor James had me swinging by his work on the way home today and throwing myself into his arms crying on his shoulder.
I don't think he understands the space I'm in - nor should I expect him to understand as he is so lucky enough not to have had a child with any lasting sickness/illness.
I feel quite alone with this today and want to curl up in bed and sleep the rest of the day away. Unfortunately, I have basketball to coach this afternoon as well as parent/teacher interviews to attend so curling up and forgetting the world today doesn't seem an option!

*sigh* Tomorrow is another day...